Being a new parent is like juggling five demanding jobs simultaneously, each offering no training, pay, and long hours. While it is a joyous time, many parents struggle to adapt to the significant change, often battling self-doubt and dismissing their concerns as paranoia. That instinct that something might be wrong with your child is powerful, and it’s crucial to trust your gut and seek help when needed.
When Veronica Monclova, 42, and Daniel Monclova, 40, welcomed their daughter Avie into the world, they closely monitored her every move, noticing some unusual movements barely a month into her life. Despite being told it was normal, they couldn’t shake the feeling that something was off. This led to a night that would alter their journey as parents forever.
After noticing Avie’s eyes moving repeatedly up and down, they rushed her to Valley Children’s Hospital. Following a diagnosis of Focal Cortical Dysplasia (FCD), the Monclova family braced themselves for the challenges ahead. FCD is a condition that causes epileptic seizures, typically affecting young boys more than girls. Avie’s case was even rarer due to the subtlety of her symptoms.
Despite initially managing Avie’s seizures with medications, they eventually proved ineffective, leading to a decision for Avie to undergo brain surgery at just one year old. The procedure was a success, and Avie began her journey to recovery, regaining her strength and leading a seizure-free life post-surgery.
Avie’s resilience and determination have been a source of inspiration for her family, who continue to support her in her medical journey. Regular follow-ups at the clinic have shown positive progress, with Avie gradually being weaned off her seizure medication as she remains seizure-free.
Despite the challenges they’ve faced, Avie’s parents want others to know the importance of advocating for their child and remaining resilient in the face of adversity. Through it all, Avie’s bright spirit and determination have shone through, inspiring those around her to stay strong and never lose hope.
As Avie continues to thrive and defy the odds, her story serves as a testament to the power of love, perseverance, and unwavering support in facing life’s greatest challenges. In a world that constantly tests us, Avie’s journey reminds us to hold onto hope and never give up, no matter how tough the road may seem.
Peace Nero is a writer and blogger who loves to explore different topics of self-development. She shares her personal experiences in order to help people discover their true purpose in life.